By Jueseppi B.
This week, the House will vote on the Gabriella Miller Kids First Research Act (H.R. 2019), legislation sponsored by Rep. Gregg Harper (R-MS) that eliminates taxpayer funding for presidential campaigns and conventions, and redirects that funding to pediatric medical research.
H.R. 2019 would help advance research and treatment efforts in several pediatric areas. “Recent scientific research breakthroughs linking Fragile X Syndrome and autism have given hope to individuals and their families,” Rep. Harper explains. “In order for clinical trials – and other advancements – to meet their full potential, adequate federal resources must be directed to pediatric research.” “We should stop wasting millions of taxpayer dollars on political campaigns and conventions, when these resources would be better spent discovering knowledge about diseases and disorders to develop cures,” says House Majority Leader Eric Cantor (R-VA).
The bill has bipartisan support in the House, and several children’s advocacy organizations have voiced their support for the measure as well. The Coalition for Pediatric Medical Research says “this infusion of funds would provide a much-needed boost to our pediatric research community, enabling it to expand research efforts to identify causes of and treatments for many of the most devastating diseases and disorders that affect children.” And the Juvenile Diabetes Research Foundation says the bill “could help us realize new therapies and research breakthroughs that could improve the quality of life for people with T1D [type 1 diabetes] and help reduce the associated costs of the disease, sooner rather than later.”
According to the Nicholas Conor Institute for Pediatric Cancer Research, “one in every 330 children in the United States develops cancer before the age of nineteen,” and “approximately 2,300 children will die from cancer in any given year.” The Gabriella Miller Kids First Research Act sends a clear signal that advancing research efforts in pediatric cancer and other diseases to help these children and their families is among our nation’s top priorities.
Show your support for H.R. 2019 by becoming a citizen co-sponsor, and tweeting about the bill using the hashtag #kidsfirst.
See more at: The Gabriella Miller Kids First Research Act
Published on Oct 25, 2013
The following is an excerpt from our Oct. 2013 interview with Gabriella Miller who is fighting cancer. Two weeks later she was placed into hospice care.
Gabriella’s Words of Wisdom: “Why Do I Think I Got Cancer?”
Published on Nov 8, 2013
Gabriella Miller (2003 – 2013) talks openly about why she thinks she got cancer.
Outtake Reel: 10-year-old cancer fighter Gabriella Miller Tells It Like It Is!
Published on Oct 21, 2013
In this outtake, 10-year-old cancer fighter Gabriella Miller expresses her frustration with our elected leaders in Washington, DC.
From The Washington Post:
In the final months of her life, Gabriella Miller was a celebrated activist, a charismatic public speaker and an advocate who raised hundreds of thousands of dollars for the Make-A-Wish Foundation and helped launch the Smashing Walnuts Foundation to fund pediatric cancer research.
She was also a kid who wanted to grow up and felt it was unfair that she wouldn’t have the chance. Even as she grieved the loss of her own life, she wanted to help her parents and little brother carry on with theirs. She left them a list of final instructions: When they go to Disney World, they have to ride the Haunted Mansion first, five times.
They should go on the cruise they’d originally planned to take as a family of four. They must always have an extra piece of cake for her on birthdays — vanilla with chocolate frosting was her favorite.
Gabriella died at home late Saturday night, October 26th, 2013, after an 11-month battle with an inoperable brain tumor.
LANHAM, Md. (CBSDC) — An act that would redirect taxpayer funding for presidential campaigns and conventions to pediatric medical research is on the floor of the House of Representatives today.
The Gabriella Miller Kids First Research Act is named for a 10-year-old Loudoun County girl who spent much of her 11-month battle with brain cancer helping to raise awareness about childhood brain tumors and money for the Make-A-Wish foundation. She died in October.
A post on Gabriella’s Facebook fan page , which is run by her parents, says they will be at the Capitol today to be on hand for the debate and vote.
In addition to bipartisan support in the House, several children’s advocacy organizations, including the Children’s Hospital Association and The Coalition for Pediatric Medical Research, have voiced their support for the measure.
“We should stop wasting millions of taxpayer dollars on political campaigns and conventions, when these resources would be better spent discovering knowledge about diseases and disorders to develop cures,” says House Majority Leader Eric Cantor (R-VA).
The legislation would designate $13 million of taxpayer-provided presidential election campaign funds to pediatric research. If passed in Congress, this would happen annually for the next 10 fiscal years.
Before her death, Gabriella was interviewed by The Truth 365, a documentary and social media campaign with the goal of raising awareness about kids fighting cancer. They produced a series of videos, and in one of them she voiced her opinion about the importance of increased funding for pediatric cancer in particular.
“Once you get cancer, you kind of got to be all grown up,” she said. “And you don’t really have a childhood,” she added, breaking into tears. “It’s not fair that us kids get… so little from the world. Just because we’re smaller, just because we don’t know as much, doesn’t mean we’re not important.”
Leesburg Today reports that Gabriella started a fundraising campaign for the Make-A-Wish Foundation late last year, soon after she found out that the organization would fund her wish, a trip to Paris.
She saw an advertisement for Macy’s A Million Reasons to Believe campaign, which donates $1 to Make-A-Wish for every Dear Santa letter it receives, and set out to deliver 10,000 letters. Ultimately, she delivered nearly a quarter million.
In May, Gabriella won Loudoun County’s Volunteer of the Year Award for her fundraising efforts. Also in May, Make-A-Wish sent her and her family to France for a two-week trip.
To become a citizen cosponsor of The Gabriella Miller Kids First Research Act, click here.
It disgusts me and sickens me that grown ass men & women in our political arena would use Gabriella Miller as a ploy/pawn to further their political agenda.
Visit Her Facebook Fan Page: Smashing Walnuts
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